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Rosemary-C
#1 Posted : Monday, March 08, 2010 9:19:10 PM Quote
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Location: york
I was diagnosed with RA April 2009. Its been quite a roller coaster from thinking I was not going to let this rule my life and taking anything I was offered, to being in hospital on bed rest because my joints were so inflamed I couldn’t move. I started on Mex and naproxen, with steroids added every now and then, next hydroxychloroquine was added and bringing the meds up to date Salazopyrin, I am still getting the flares, but what is realy bugging me is the salaz have stained my other wise white teeth orange! Any one else had this problem?
jenni_b
#2 Posted : Monday, March 08, 2010 9:34:31 PM Quote
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hello and WELCOME Rosemary.

I took Sulphazalazine for a time, actually had 2 goes at it over the years- it made me wee orange! aLso made me feel a little downcast but it works fine for lots of people and really has changed their lives for the better.

if you are still getting flares, they might want to tinker about with the dosage a little.

anyway- welcome again

Love Jenni x
how to be a velvet bulldoser
Kathleen_C
#3 Posted : Monday, March 08, 2010 9:49:04 PM Quote
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Hello Rosemary and welcome to the forum. You are right when you say the time after diagnosis is a rollercoaster.

I was diagnosed in Jan 2006, and was initially put on salazopryn. I was on it for 6 months, but don`t remember it staining my teeth. It didn`t work for me, and I moved on to methotrexate, cyclosporin, and leflunomide - on their own or in combination. Sometimes it takes a long time to find a drug combo that works, but once they do things should improve. If you are still having flares they might increase the dosage. Have you had a steroid injection to kick start the meds?

By the way, I`m Kathleen, and we live in Durham. My younger son & his family live in York, at Rawcliffe.

Take care,

Kathleen x

Maria_R
#4 Posted : Monday, March 08, 2010 10:16:11 PM Quote
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hi Rosemary. I was diagnosed march 08 and put on salazopyrin. It worked well for me for about 2 yrs at 4 tabs a day. this was increased to 6 a day unfortuatey it doesnt seem to be working so well.

It makes my wee go yelow but hasn't affected my teeth.

all the best

Maria
dorat
#5 Posted : Monday, March 08, 2010 10:21:16 PM Quote
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Location: Huddersfield
Hi Rosemary,

Welcome to the forum but sorry you have RA!
I'm 60 and have had RA for 9 years, now on mtx and humira.
I was born and brought up in York (Acomb and Bishopthorpe) and my sister and brother still live their with their families.
Looking forward to getting to know you.

Love, Doreen xx
joeyvt
#6 Posted : Tuesday, March 09, 2010 10:33:29 AM Quote
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Location: Bristol
Hi Rosemary,

Welcome to the forum!

I've had RA for 6 years now and am on Methotrexate, Hydroxychloroquine and Rituximab.

Hope you get those flares under control soon and looking forward to get to know you better.

Joanna
Lorna-A
#7 Posted : Tuesday, March 09, 2010 10:50:29 AM Quote
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Hello Rosemary


My name is Lorna and I am new too. I had staining of my teeth too on Sulfaszalazine, it went when they stopped the tablets, I no longer need them. Hope things get better for you too. Everyone seems so friendly, its nice people understand. Take care x Smile
jeanb
#8 Posted : Tuesday, March 09, 2010 10:56:45 AM Quote
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Location: Timperley
Hi Rosemary

Welcome!

I'm 66 (almost 67 Blushing (the granny of the forum), married with one daughter, lovely son in law and 2 great grandchildre aged 2 and 4.

I've had RA about 7 years

Can't hep with the orange teeth, but always have a giggle when I think about Jenni's orange wee LOL LOL

Look forward to getting to know you.

Love Jeanxxx
jenni_b
#9 Posted : Tuesday, March 09, 2010 11:53:20 AM Quote
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jeanb wrote:


Can't hep with the orange teeth, but always have a giggle when I think about Jenni's orange wee LOL LOL


Jean! it looked like I had had an accident at sellafield!
how to be a velvet bulldoser
lizziemouse
#10 Posted : Tuesday, March 09, 2010 1:32:43 PM Quote
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Hi Rosemary, welcome to the forum,
After about 12 years on it im sure my wee is now fluorescent - i think it might even glow in the dark! I havent noticed any teeth staining but my contact lenses always turn yellow after a little while.
I did use to get a lot of mouth ulcers and a "furry" tongue which i thought might be linked to the salazopyrin - so i now i always make a point of throwing my tabs down with water really quickly, not sure if this might help but i dont get so many ulcers and never a furry tongue now -
- Apparently, strawberries are fantastic for keeping your teeth white.
My tabs are enteric coated not sure if this is relevant... as more to do with once they get into your system? Are yours enteric coated though - it should say on the packet...
Anyway, I'm Liz, look forward to getting to know you Rosemary & now we've discussed my wee i think that makes us great friends already! ;)
jeanb
#11 Posted : Tuesday, March 09, 2010 2:01:31 PM Quote
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Not only orange wee but fluorescent wee as wellBigGrin RollEyes
amanda_lewin
#12 Posted : Tuesday, March 09, 2010 4:43:32 PM Quote
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Location: Oxfordshire
Welcome!

I have the 'wee problem' too but so far not orange teeth...poor love, at least no one looks at wees... ( we hope)


I've been on SLZ for ages, cannot remember exactly when, but I take three tabs but am supposed to be on four...

Love,

Amanda
LynW
#13 Posted : Wednesday, March 10, 2010 9:17:38 AM Quote
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Location: Thornton Cleveleys
Hi Rosemary

Welcome to the forum. I'm Lyn, married to Mike, with four children (22,16,16 and 15) all in various stages of education and costing us a fortune! We live in Thornton Cleveleys, Lancashire (close to, but not that near Blackpool!!!!!). I have had RA for almost 22 years and run the gamut of medication and various joint surgeries.

Sometimes, but perhaps not in your case, it can be the teeth at fault rather than the meds! If the enamel is not particularly strong/hard the softer layer underneath can actually absorb colourings etc and lead to the teeth becoming stained. I believe this can be helped by asking your dentist to apply a layer of hardener over the teeth to prevent this. One of my sons loves fresh orange juice and as good as it is it does cause some staining in him. Our dentist noticed straight away and dealt with it. He has had the enamel 'painted' a few times to prevent damage. I'm surprised your dentist hasn't said anything but may be worth mentioning. Good luck!

I was on Salazopyrin for a time but like most of the stuff I've had it just didn't work for me! Everyone's different though so hope you get a good result Smile

Look forward to getting to know you,

Lyn x
My son, Ian, completed the BUPA Great North Run on 15th September running for the National Rheumatoid Arthritis Society (NRAS). You can read his story at http://www.justgiving.com/ianlukewilson

HellyC
#14 Posted : Wednesday, March 10, 2010 11:16:18 AM Quote
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Location: Leicester



Welcome to the forum Rosemary!

I'm Helly, 35yrs old and married to Phil. I was born with juvenile rheumatoid arthritis which went into remission when I was 12. Unfortunately it came out of remission last September and so I am now on Etodolac and Hydroxychloroquine.

I was on sulphasalazine many, many moons ago and I had the luminous wee (which as a 7yr old was quite fun!) but I also had a rather strange staining around my mouth.... You know when kids drink milk.. they get that 'moustache'? Well that was me, but bright orange...

Needless to say, I soon came off it... Might be an idea to mention it to your rheumy or even dentist... I know I get acid reflux from my meds and my dentist told me to swish mouthwash round before bed, but not rinse as this would help protect my teeth...
Helly x

Celebrating 10yrs of National Rheumatoid Arthritis Society

Doing a Tandem Skydive - May 2011 - All Sponsorship Welcome - www.justgiving.com/helencopeland






Read my blog - Helly Copeland

chockers
#15 Posted : Wednesday, March 10, 2010 11:31:15 AM Quote
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Hi Rosemary

come and meet us at Leiscester 24 April at the hilton hotel for lunch £15
our 3rd forum get together

some people staying over for weekend


i am christine had R.A and overlap scleroderma for about 3 years
married with a son at uni

love christine BigGrin

The chocolate eating housewife ...The washer woman .....naughty lady
barbara-o
#16 Posted : Wednesday, March 10, 2010 10:42:13 PM Quote
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Hi Rosemary,

A big warm welcome to the forum. I'm married aged 50 with our lovely 23 yr-old daughter still living at home with us. I was diagnosed with RA last year and used to take Sulf, didn't get yellow teeth, but had orange pee, whilst on itLOL LOL

love,

Barbara
XXXXXX
Rosemary-C
#17 Posted : Thursday, March 11, 2010 9:16:30 AM Quote
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Location: york
Hello everyone!!

Thank you for the reply’s, I should have been on here a lot sooner, I didn’t realise how isolated I have been feeling until now even with a supportive family, I am trying the capacious water to cut down on the ulcers, going to try strawberries what a great excuse Its just great that I am not on my own with orange wee and i dont have to expain myself. Thank you Rosy
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